Join us to see the beautiful faces behind rare diseases. Learn from clinicians, researchers, families and patients as you enjoy a fine art exhibit featuring young patients afflicted by rare disease.
This event is the second of a two part program, and is a collaboration between the Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Osler Society, and the Feinstein Institute of Medical Research.
This program will feature poster presentations by graduate students of the Elmezzi Graduate School of Molecular Medicine, and will focus on the Lysosomal Storage Disorder conditions, Gaucher Disease and Morquio Syndrome Type A. Join us for a panel discussion including patients living with these disorders, moderated by Martin Bialer, MD, a pediatric geneticist and associate professor at the Zucker School of Medicine, and leading expert at Northwell Health’s Lysosomal Storage Disease Center, and Sharon Chen, a genetic counselor.