How to get involved

For additional information, please contact us at ROSE@northwell.edu or (516) 562-ENDO (3636).

Contact ROSE

Women with a diagnosis of endometriosis, over the age of 18, who are not pregnant or breastfeeding can become involved in the ROSE study. Each participant will be asked to:

  • Answer a health history questionnaire
  • Answer questions about how endometriosis impacts her life
  • Provide a DNA sample from either a blood sample (from the arm) or a cheek cell swab
  • Offer a sample of menstrual flow that can be collected at home using a simple procedure; this collection is optional
  • For women who are undergoing surgery or have had surgical treatment for endometriosis, allow ROSE study researchers to collect excess endometrial tissue samples (not needed for your diagnosis/treatment) removed during surgery

For additional information, please contact us at
ROSE@northwell.edu or (516) 562-ENDO (3636).

We would also like to study first-degree relatives (siblings, parents and/or children, both women and men) of women with endometriosis who do not have endometriosis. Each unaffected participant will be asked to:

  • Answer a health history questionnaire
  • Provide a DNA sample from either a blood sample (from the arm) or a cheek cell swab
  • Offer a sample of menstrual flow that can be collected at home using a simple procedure; this collection is optional

We are also enrolling women without endometriosis to participate as control or comparison subjects through the Feinstein’s Genotype and Phenotype (GAP) Registry. Each non-diagnosed participant will be asked to:

  • Enroll in the GAP
  • Answer a health history questionnaire
  • Provide a blood sample (from the arm)
  • Offer a sample of menstrual flow that can be collected at home using a simple procedure

Participants will be compensated for providing a menstrual flow sample. Women living in the New York/Long Island metropolitan area can schedule a study visit at any hospital in the Northwell Health enterprise. Women not local to the area can still participate and complete study activities remotely, through e-mail and express mail. Click the links below to see:

ROSE Consents

GAP Control Consents